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Haemophilia sufferers urged to get physiotherapy

Sen David / Khmer Times Share:
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The Cambodia Haemophilia Association on Sunday appealed to parents whose children have the disorder to bring them for physiotherapy to prevent them from becoming disabled.

The association, during a workshop at the National Paediatric Hospital, said the therapy exercises could help reduce some of the adverse effects of the disorder.

Haemophilia is a rare disorder in which the blood doesn’t clot normally because it lacks sufficient blood-clotting proteins. It is a genetic disorder which is passed from a parent to a child.

The painful disorder causes swelling in the joints and can also be fatal if there is bleeding in the internal organs, especially the brain.

Sem Sok Phanha, association president, encouraged family members and sufferers to join the association’s activities to find out more about the disorder and garner greater public support.

He noted that they would also get updates on free physiotherapy services.

“We appeal to the parents and family members to join us to find out about services available to help patients,” Mr Sok Phanha said.

He added that the association, in cooperation with the National Paediatric Hospital and Angkor Hospital for Children, has sent five physiotherapists for training in London and they would return to the Kingdom and share their expertise.

Last month, the association said during an event to mark World Haemophilia Day that it will continue to provide counselling and physiotherapy services for sufferers, noting that Cambodia still lacks enough specialists to deal with the rare disorder.

Pheng Van, a paediatrician at the National Paediatric Hospital who attended Sunday’s workshop, said physiotherapy was important to help sufferers avoid becoming disabled.

“It is very important for family members and sufferers to understand that this therapy can help reduce the risk of disability,” he said.

According to an association report, one in 10,000 people worldwide suffer from haemophilia, 70 percent of whom have got it from a parent.

The report said that there are 3,000 people suffering from the disorder in the Kingdom and they can seek help at the National Paediatric Hospital in Phnom Penh and Angkor Hospital for Children in Siem Reap.

Professor Chean Sophal, a haemophilia specialist at National Paediatric Hospital, has been reported as saying that there are currently 10 specialists to treat haemophilia in the Kingdom.

He noted that the National Paediatric Hospital and Angkor Hospital for Children will continue to train more specialists to deal with a growing number of people suffering from the disorder.

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